SPG50 has less than 100 cases worldwide and only 2 cases in the UK. Funding is needed to for the final stages of finding a cure.
“Meet Dua aged 3. She has been diagnosed with an ultra rare condition called SPG50. There are less than 100 cases worldwide and only 2 in the UK including Dua.
SPG50 is a neuro degenerative and progressive condition which means Dua’s body will go into paralysis, starting from the toes, eventually leading to the brain. It is life-limiting if not treated. Trials are ongoing in the USA for a gene therapy which has shown positive results in the 5 children treated so far, but the final stage cannot go ahead because of funding”
This is the instagram post by Unique Charity which is making a push to try and help Dua’s family raise £250,000 towards efforts at curing this disease. For more information on this story you can read the article posted by itv.com here.
All for one and one for all
Welcare finds the cause a worthy cause and has donated £10,000 towards this goal. Welcare believes in a brighter future for children in the UK and Dua is no exception. It is just her circumstances that are exceptional and that’s why Welcare is taking the exceptional responsibility to champion this cause and help out.
Someone has to act and Welcare has the means and the heart to do so.
If you would like to donate to this cause you can follow this link and contribute towards saving Dua’s life and the lives of others afflicted by this horrific disease. Click here to donate.
